Limbo...Not Our Favorite Place

Last time I wrote, we were praying that we'd get timely approval (from our insurance company) for Andy's new medication.  Sadly, a month has gone by and that hasn't been the case.  We are now on our third appeal, and all of the neurologists on his team have written and asked for a case review by the insurance company's "rare diseases panel."  (At least there is such a thing.)  In case that doesn't work, we've also applied for aid directly from the drug manufacturer, a program that UCSD referred us to.  

Hopefully something works out, and soon.  The steroids are keeping his symptoms relatively stable, but the side effects are really getting to him as he's been on high doses now for over seven months. 

Keep praying, dear ones!

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