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Showing posts from September, 2022

Post-Infusion Update

It's been a minute, so I thought I'd post the latest... That crazy heat-wave that we just had?  Yep, it caused Andy's symptoms to flare.  We used our little, portable A/C unit and that made a big difference for him; he quickly returned to his baseline.  A huge shout out to our friends who gave it to us! The trip to Munich was a success.  He had a little mishap with one of his medications and he did catch a good cold, but he slept most of the weekend when he returned and then started to feel normal again.  The timing was perfect; the return of the B-cells likely aided him in fighting off the cold.  Yay for the little things. The infusion on 9/7 went well, with only the expected side effects ( fatigue and itching ).  While they are annoying, it's so much better than some of the other ones, so we'll take it.  By now he should be B-cell free again. As always, we continue to pray for his fatigue and that he'd have the energy that the needs.  It se...